It's time for me to hit the pause button on my blog. This space has been like a lifeline for me while weathering this storm, and I'm...

A week in the life of this mama fighting sarcoid

wide awake At 4:17 AM on a Tuesday, as I was wide awake for the third night in a row, I was thinking about this blog. My sleep schedule...

What a day!

May is over?!

Sent back to my “hotel” away from home….

Mother’s Day - what’s your happy place

Every time I pop one of my 12 pills or give myself one of the 4 daily shots, my brain can't help but run through all the side effects. I...

Dealing with a long-term illness can be tough, especially when every day feels uncertain. It's a challenge to find the silver lining or...

Today, I just had to sit down and write because I was feeling super scared as well as anxious. I try to keep it together and stay strong,...

Sending out some Easter vibes to everyone and hope that you had a nice time celebrating with your loved ones! I’m grateful to be back...

Time to ditch this taco stand; (better known as Huntington Hospital). Been here five days and four lovely nights in the comfort of my...

And it happens so fast

Somgthat doesn’t end

This week felt like a slow-motion marathon with daily doctor appointments! I was making my monthly rounds and getting things moving with...

After a dramatic flight which was almost canceled—I’m finally back from MN! We touched down at LGA at 1 AM and didn’t get my head on the...

Day three kicked off with a change in my caregiver. Alex had to head back to Florida to be with her three little ones and I will miss her...

The Mayo Journey has begun

The hour is almost upon us

These are the days of the week…..