Song: This is the song that doesn’t end…..

Have you ever experienced that blissful moment when you think you've dodged the germ-filled chaos from your kids? Then, out of nowhere, you get blindsided… taken down like a sack of potatoes by their germs. This time, I went all out; I wore a mask at home, sanitized my hands every chance I got, washed my hands if I even brushed against a surface my child had touched, started using the nebulizer at the first hint of a cough, and even made my little ones sit far away from me on the couch and at the table. But guess what? My body, riddled with sarcoidosis, still didn’t care and felt like it was time for my monthly take down.

At the doctors all masked up looking as puffy as ever

As I learned at Mayo, it’s very important to nail down the cause of feeling like shit, the underlying condition asap so that it can be treated as quickly and aggressively as possible. Thereby, hopefully avoiding a stay at the hospital hotel. Off to my general practitioners office it is this afternoon for some swabs, pokes and interviews with my mouth, ears & nose. I’m not sure my body can take anymore medications at this point in time but hey, let’s give it a shot, better than coughing & have people hibernating from me 🤣.

My daughter made some dairy free Dubai chocolate and for that, my ass is very thankful…… and my stomach 🤪

My doctor put on a little shtick and pretended he didn’t recognize me, even though we had just seen each other four days ago. (His sarcastic attempt at making me laugh) I followed up by asking if there were any room rentals in his office to make things easier since I’m not driving…… apparently the office isn’t zoned for sleeping. Who would have thought?! In the end, he didn’t  feel that my lungs are operating as well as he’d like, which I’m sure is linked to my annoyingly obnoxious cough. Keep using the nebulizer, start the antibiotics, and stick with my current meds is the plan with a follow up for viral testing tomorrow.

So many possibilities…. What will it be?!

On a separate note, you may recall how I often mention doctors apologizing to me for my situation. Well, today my doctor looked at me with a very serious facial expression and commented that admires how I keep moving and manage to smile despite all my comorbidities. Hearing that from the Dr hit differently—it was a clear way of acknowledging that the struggle is real and I just don’t like the negative coloration of that C word! (Not the dirty C word…. The medical C word; Get your minds out of the gutter!)

These slipper/shoes are my everything! The comfort is real.

Today, the sun is finally making an appearance! Since I'm just at the lab, I decided to throw on some fresh pajama pants and comfy slippers—really kickin it up a notch for the lab crew. I even brushed my teeth and hair (they better notice). After all the swabs and tubes are used to collect those nasty samples, we should be able to pinpoint the exact new infection which was recently given access to my host body. Let’s channel our inner Whoopi Goldberg today and “Say a little prayer…” (good movie)

A momentary lapse of napping

I went with Grammy (Tom’s mom) and Briggs to drop him off at pre-K before heading in for my tests. Honestly, I sat in the car counting down the seconds until I can crawl back into bed, lying on my side to relieve my back. The constant coughing isn’t helping my fractures at all… if anything, I’m slightly concerned they might be making them a little worse, but hey at this point who the hell is counting. Thankfully, the nose swabs only took half a second, and I was back rollin my way to the car. I’m in bed as I write, no shame in the game, letting every joint and muscle that’s screaming at me have a moment to rest. I’ll keep checking the patient portal every 30 minutes, like any rational person would… if you decide to post results online then you better be prepared for your patients to stalk that shit! I really just want to know in order to confirm the course of treatment, we shall see, right now my coping mechanism is being as lazy as a fat ass elephant.

Side note, these jumbo blueberries are everything!!! Absurd $$ but freaking amazingly yummy…..size does matter ladies, especially with blueberries.

With Passover, Spring Break, and Easter around the corner, I was looking forward to spending time with family. However, these circumstances and situational boundaries terrify me. My immune system is so weak from the medication that all my precautions, wearing masks, social distancing, and washing hands feel pointless. Instead of attracting glances from some hotties, I seem to be a magnet for all of the germs surrounding me daily. Switching my meds around won’t help me get off prednisone any quicker; it’ll just drag out this mind challenging chess game. I need to carefully consider the pros and cons before making the right choice for myself. I really dislike the idea of disappointing people or missing out on family gatherings, but at this stage in my life, I have to keep reminding myself that focusing on my health is the priority in hopes of getting some sense of normalcy to return.

My unique superhero’s putting on a show for me- oh sorry wait, making a movie! 🤪

I’m thankful to everyone who continues to stand by as I get knocked down to lend positive reinforcement to help my fat ass get back up again! This whole thing seems like a fake, overdramatic horror movie; sadly in my case it’s reality. It’s impossible for me most days to comprehend that this is my current life and that a persons body can become like a dumpster dive adventure so quickly. Those who continue to dive on into the smelly ass pile of trash daily while continuing to push me to smile; your love, prayers and friendships do not go unnoticed.

Let’s all wish upon a star tonight that whatever bacteria they found up my nose goes away as fast as it arrived! I need speed train time around here not LIRR!

Wish it up peeps!